Reach for the sky, find a cure for EI!

At the EI Cure Project, we offer expertise, day-to-day support, and fund research to find better treatments for all those affected with Epidermolytic Ichthyosis (EI).

LATEST NEWS!

June 2025

EI Global Symposium

We are truly delighted to announce the very first EI Global Symposium will take place at the Zurich Careum in Switzerland on March 19th 2026.

To learn more about the event, and to see the program in more detail, please click on the “EI Global Symposium” button below:

Epidermolytic Ichthyosis Global Symposium
Epidermolytic Ichthyosis Global Symposium - Day 1
Epidermolytic Ichthyosis Global Symposium - Day 2
EI Global Symposium - Thanks to funders

We are excited to welcome you to this exciting event that brings together patient and parent advocates, healthcare professionals, doctors, researchers, and scientists.

For the very first time, the spotlight is dedicated entirely to Epidermolytic Ichthyosis (EI), and we simply cannot wait!

Learn more about the EI cure project

Fundraising Targets

Latest update on 12th April 2025

We are absolutely delighted to have completed our 1st Phase of funding.

Now we must take on the enormous challenge of raising enough funds needed to translate preclinical research in the laboratory into human clinical trials.

The estimated cost of this is 3 to 6 million!

So please continue to support us…

We’ve come so far, we just have to keep going!

While you are here, please consider making a donation to fund important research

Thank you