Collaboration with ICHTHYP foundation

Last week I met with an incredible EI family from Spain. Ruth Anton-Morales and her husband have two sons, the youngest of which is affected with a severe form of KRT1 EI with PPK. Ruth explained that she and her husband are engineers, and consequently are very experienced at running large projects and collaborations of people. They realised that every country has their own ichthyosis charity or foundation, and that it might be better to get all this expertise to work together to try to cure ALL types of ichthyosis. From this vision came the ICHTHYP foundation, and I am proud to say that the EI cure project is now a part of this collaboration alongside all the other ichthyosis organisations from across the world. For more information about the ICHTHYP foundation, please click on the logo above to go to their website.