EI Cure Project Canada

It brings me great pleasure to introduce EI Cure Project Canada, founded by Rachel Wagner and Jordan Arndt.

Rachel and Jordan welcomed their first-born in 2023, and quickly found out that he was affected with Epidermolytic Ichthyosis (EI). They soon learned about the EI Cure Project, and were very glad to find some help for a condition that their healthcare team had very limited knowledge of. The only flaw was that Canadians often couldn’t get the same products as others in different parts of the world, and they were dismayed that Canadians wouldn’t be able to donate to a home charity.

Despite being extremely busy with a new baby with EI, Rachel and Jordan decided they wanted to make a difference and bring “Impactful change to Canadian families affected with EI”. After many weeks and months of discussions and hard work, they founded their own not-for-profit organisation and became members of the EI Cure Project board.

On their new website they said:

“The EI Cure Project was immensely helpful and reassuring to us when we were grappling in the early days with our rare diagnosis. Above all, the EI Cure Project gave us hope, and so we decided that we wanted to extend this organisation to Canadians.”

“In December 2023, we founded EI Cure Project Canada with the aim of helping to fund research for a cure, support Canadians with information on what resources are available in Canada, in addition to help source the best products in Canada, and help Canadians to connect with other Canadian families.”

Rachel and Jordan, we are so grateful to you for taking this brave step, and we cannot wait to see how the EI Cure Project can make a difference to better the lives of Canadians affected with EI.