Research Grant Award Winners 2024

The EI Cure Project Grant Review Committee and Board of Directors are delighted to announce FIVE AWARD WINNERS for the following research projects:

The Winning Projects

The Collaborators

Many of our projects would not have been possible without collaborators.

By applying for grants from other charities, and seeking alliances with other research institutions and organisations, we have been able to make EI Cure Project donations stretch even further towards achieving our goal of finding better treatments for EI.

Please see the project titles below for details of our kind and generous collaborators:

1) Dr Leonie Frommherz and Professor Cristina Has (Germany)

“Influence of inflammation parameters and signalling cascades for potential therapeutic approaches in epidermolytic ichthyosis: A Comprehensive Analysis Integrating Proteomic and RNA-Seq Data”

- 1 year project funded entirely by EI Cure Project

2) Dr Daniela Ortner-Torbider and Professor Matthias Schmuth (Austria)

“Delivery of keratinocyte-targeting nanocarriers loaded with gene editing tools to skin”

- 3 year PhD funded by EI Cure Project in collaboration with US Not-for-Profit PC Project and the Medical University of Innsbruck

3) Dr Joanna Jacków-Malinowska and Professor John McGrath (United Kingdom)

Development and testing of gene editing for epidermolytic ichthyosis”

- 3 year PhD funded by UK Charity the Rosetrees Trust in collaboration with the EI Cure Project

4) Professor Wei-Li Di and Professor Gill Elliot (United Kingdom)

“Development of topical gene therapy for congenital ichthyosis using herpes simplex virus based engineered virus-like particles (eVLPs)”

- 2 year Post-doctorate project funded by EI Cure Project in association with the University College of London (UCL) and University of Surrey

5) Dr Antoni Gostynski and Dr Otte Borghouts (Netherlands)

“COSII - Core Outcome Set for Inherited Ichthyosis”

- 2 year project funded by EI Cure Project in association with Ichthyosis Netwerken (Netherlands), multiple collaborators from European Ichthyosis charities, and Industry Partners (It is not possible to disclose all the collaborators at this time).

Special thanks to UK Charity the Rosetrees Trust, US Not-for-Profit PC Project, Medical University of Innsbruck, University College London (UCL), University of Surrey, Ichthyosis Netwerken, and all the collaborators involved in the COSII study.

All this would not have been possible without you. Thank you.

Once started, each of our research teams will provide us with an update of their progress at 6-monthly intervals, and they have given us permission to share these progress reports here on our website.

The projects are all due to start between 1st October 2024 and 1st February 2025, so we should soon see a steady stream of exciting updates about these super projects.

If you are interested to learn more about our researchers' progress, please follow us on social media, and keep checking our updates page.

Please know that our work does not stop here, we have new goals and new targets for our next few years, so please continue to support our cause, and know that we all do our very best to make sure that your donations go as far as they possibly can!

Thank you ALL for your support!

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