Tom Lill

I’m Tom Lill and I'm married to the wonderful Helen Lill, the founder of the EI cure project. We currently reside in Lugano, Switzerland with our 3 children. By profession, I’m a physical education teacher and currently serve as the director of residential life for a boarding school in Switzerland.

Our youngest daughter, Arienne, has KRT10 EI, and whilst her skin has meant that we’ve had to adapt many aspects of our lives, we have always tried hard to find a way to make sure our lives are as full of fun and adventure as we can. Arienne has a character which is loving and fierce in equal measures, and she has 2 amazing siblings that help her find her way.

I'm thrilled to be a part of this team because I believe it's important to make a positive impact in the world. It would be so wonderful to provide families in similar situations with the opportunity to make a choice about their circumstances. I know that in those early days after Arienne’s birth, if someone had offered us the chance of a cure, we’d have grabbed that opportunity with both hands.